And some just disagree. 4/10 doctors are opting out. If it's so bad, why not more than 40%?
Seriously ?
Like GPs have to worry ? *IF* you have a salary that will happily see you right no matter what, then I guess you could afford not to be too bothered. That said. This indicates that 40% of doctors *ALREADY* have opted out. Most people are yet to get their cogs in motion on the matter...ergo, expect that figure to increase significantly, whereby it's the minority of doctors who choose not to do so ;-)
Blimey some handbags being thrown out the pram on this thread.
From what I understand that opting out wont stop your information being accessed, but opting in will make it a lot easier to access in a standardised way, which has to be a good thing for any medical professional trying to help you.
I'm sure its going to be used to crunch data and work out where money can saved as well and I have no problem with that. (and all sorts of other uses too)
I imagine the foil hat wearers opted out of the census as well. I used to work for an IT company who specialised in collecting and crunching data from big surveys like this and I can tell you for a fact that the data is collected primarily to improve peoples lives, not to allow companies to make money and I'm sure that's what happening here too.
Blimey some handbags being thrown out the pram on this thread.
From what I understand that opting out wont stop your information being accessed, but opting in will make it a lot easier to access in a standardised way, which has to be a good thing for any medical professional trying to help you.
I'm sure its going to be used to crunch data and work out where money can saved as well and I have no problem with that. (and all sorts of other uses too)
I imagine the foil hat wearers opted out of the census as well. I used to work for an IT company who specialised in collecting and crunching data from big surveys like this and I can tell you for a fact that the data is collected primarily to improve peoples lives, not to allow companies to make money and I'm sure that's what happening here too.
Good Luck to all those who feel so confident in remaining 'in.'
Even the Daily Mail, a pro-establishment piece of useless flotsam, has acknowledged the following...*QUOTE*
From March the NHS will begin taking personal information from patients' GP records to pass on to researchers and private firms
There are fears the information could fall into the hands of hackers
Critics also claim information could be used to push up insurance premiums
But it has emerged the NHS is already handing out patients' personal data
Oh thank you SO much for providing the link to the official NHS leaflet
You know the one where it doesn't even mention care.data
The one that comes with the junk mail so many people won't read it
The one that doesn't have an opt out form
And the one that wasn't even going to be PUBLISHED until privacy advocates and GPs themselves protested and forced to NHS to produce it - yes that's right all our data was going to be uploaded
without our knowledge and without giving us the chance to opt out
So as you like to post links here are a few for you http://care-data.info/ already posted but written by a GP (not a tin foil hat wearer but someone who has made a career as a GP and has responsibility for patients health and patients data)
And whilst we are talking about GPS take a look at this one
Just popped a letter into my GP telling them that I wish to opt out & was told by a smiling receptionist that they weren't taking part anyway but thanked me for the letter & assured me that my request would be noted.
I got the leaflet about Data Sharing in the post and when I took my mum to her GP I asked the receptionist about it, she gave me information about Summary Care Records and an opt out form for the scheme, she said there wasn't any other leaflets about Data Sharing.
I asked the nurse who saw my mum, she thought I was talking about local Data Sharing between the practice and other local NHS health providers.
I'm not completely sure I understand properly....but there appears to be (at least) three distinct ways that the NHS may share your medical data:
* local data sharing - EMIS, SystmOne, Vision 360 systems
The GP and the local health services share all or limited data with each other concerning a patient's healthcare.
* national data sharing - Summary Care Records, NHS Spine
A short summary of a patient's healthcare record is put on a nationally centralised data centre which can be accessed directly by healthcare professionals anywhere in England, should the need arise.
* Care.data - General Practice Extraction Service (GPRS) and HSCIC (Health and Social Care Information Centre)
This has nothing to do with providing direct treatment for patients.
Identifiable data will be extracted from GP records through the GPRS and forwarded to the HSCIC to be linked with information from secondary and social care settings; this data will then be then be "anonymised" or "pseudonymised" prior to publication by the HSCIS or before it is made available to NHS organisations, non-NHS researchers and private companies.
Whatever the data is going to be used for I really don't care. There is nothing in my medical files that I care if it gets into the public domain or not.
If it means the NHS can raise a bit of cash, then hopefully us taxpayers can get a reprieve from constant tax rises.
I work in the NHS as a Senior Systems Developer so I feel obliged to opt-out. I work at the grass roots CCG level and don't believe that it adds anything to the welfare of the patient what so ever.
However the information flow between Primary & Secondary healthcare is not as good as it could be and that's what needs the investment not this bag "o" crap.
First of all care.data are NOTHING I repeat NOTHING to do with having your medical records in hand for medical professionals to treat you thats the summary care record data base.
This is something else entirely
And for those of you who believe like woodbush that they are not going to give your name
think again
This link is written by a GP, (BTW 40% of GPS will or have already opted out - what does THAT tell you)
Please have a good long look at the part that says that
The HSCIC also says that identifiable (Red) data will be available to insurance companies - as long as those companies promise that they will not use it "for the purposes of selling or administering any kind of insurance", and as long as their reason for wanting the data was "to improve NHS patient care".
i opted out of the summary care record database as well, fed up with being asked, when I say no, then it should mean no.
Blimey some handbags being thrown out the pram on this thread.
From what I understand that opting out wont stop your information being accessed, but opting in will make it a lot easier to access in a standardised way, which has to be a good thing for any medical professional trying to help you.
I'm sure its going to be used to crunch data and work out where money can saved as well and I have no problem with that. (and all sorts of other uses too)
I imagine the foil hat wearers opted out of the census as well. I used to work for an IT company who specialised in collecting and crunching data from big surveys like this and I can tell you for a fact that the data is collected primarily to improve peoples lives, not to allow companies to make money and I'm sure that's what happening here too.
what have foil hats got to do with it? some of us like our privacy and don't like our data being sold to the highest bidder. As for the census, I put as little data on it as I could and what data i did put on there was not correct anyway.
also, i would love to try and read it with their machines, it was a bit crinkled by the time they got it back, with some grease from my toast and a few paw prints from my cat when it fell on the floor. the census that is not the cat
Comments
Cos I'm a grumpy old git...Jim Davidson generation. I'll moan about myself if I can't find something else to gripe about
Seriously ?
Like GPs have to worry ? *IF* you have a salary that will happily see you right no matter what, then I guess you could afford not to be too bothered. That said. This indicates that 40% of doctors *ALREADY* have opted out. Most people are yet to get their cogs in motion on the matter...ergo, expect that figure to increase significantly, whereby it's the minority of doctors who choose not to do so ;-)
From what I understand that opting out wont stop your information being accessed, but opting in will make it a lot easier to access in a standardised way, which has to be a good thing for any medical professional trying to help you.
I'm sure its going to be used to crunch data and work out where money can saved as well and I have no problem with that. (and all sorts of other uses too)
I imagine the foil hat wearers opted out of the census as well. I used to work for an IT company who specialised in collecting and crunching data from big surveys like this and I can tell you for a fact that the data is collected primarily to improve peoples lives, not to allow companies to make money and I'm sure that's what happening here too.
Good post.
Fwiw - http://www.nhs.uk/NHSEngland/thenhs/records/healthrecords/Pages/care-data.aspx
Good Luck to all those who feel so confident in remaining 'in.'
Even the Daily Mail, a pro-establishment piece of useless flotsam, has acknowledged the following...*QUOTE*
From March the NHS will begin taking personal information from patients' GP records to pass on to researchers and private firms
There are fears the information could fall into the hands of hackers
Critics also claim information could be used to push up insurance premiums
But it has emerged the NHS is already handing out patients' personal data
Full article for the Daily Mail sorts here
http://www.dailymail.co.uk/news/article-2543020/NHS-handing-private-data-thousands-patients-Details-given-universities-hospitals-watchdogs-without-checking-consent.html
Oh thank you SO much for providing the link to the official NHS leaflet
You know the one where it doesn't even mention care.data
The one that comes with the junk mail so many people won't read it
The one that doesn't have an opt out form
And the one that wasn't even going to be PUBLISHED until privacy advocates and GPs themselves protested and forced to NHS to produce it - yes that's right all our data was going to be uploaded
without our knowledge and without giving us the chance to opt out
So as you like to post links here are a few for you
http://care-data.info/ already posted but written by a GP (not a tin foil hat wearer but someone who has made a career as a GP and has responsibility for patients health and patients data)
And whilst we are talking about GPS take a look at this one
http://www.pulsetoday.co.uk/views/opinion/the-government-must-rethink-the-risks-of-this-flawed-data-sharing-scheme/20005696.article#.UuuWqCikJ55
Pulse is a journal for GPS written by and for GPS it is not (as far as I am aware) affiliated to conspiracies R Us or Tin foil hat journal
And these two articles
http://lynwhitfield.wordpress.com/2014/01/26/caring-about-care-data/
http://2040infolawblog.com/2014/01/24/an-intelligent-grown-up-debate/
Both interesting reading
Now you are just being 'paranoid' (apparently) and you 'know' it.
Excellent links, and being serious - thanks. All useful information is appreciated..!!
I asked the nurse who saw my mum, she thought I was talking about local Data Sharing between the practice and other local NHS health providers.
I'm not completely sure I understand properly....but there appears to be (at least) three distinct ways that the NHS may share your medical data:
* local data sharing - EMIS, SystmOne, Vision 360 systems
The GP and the local health services share all or limited data with each other concerning a patient's healthcare.
http://bma.org.uk/practical-support-at-work/ethics/confidentiality-and-health-records/principles-for-sharing-local-electronic-patient-records-for-direct-patient-care
* national data sharing - Summary Care Records, NHS Spine
A short summary of a patient's healthcare record is put on a nationally centralised data centre which can be accessed directly by healthcare professionals anywhere in England, should the need arise.
http://www.connectingforhealth.nhs.uk/systemsandservices/scr/patients
* Care.data - General Practice Extraction Service (GPRS) and HSCIC (Health and Social Care Information Centre)
This has nothing to do with providing direct treatment for patients.
Identifiable data will be extracted from GP records through the GPRS and forwarded to the HSCIC to be linked with information from secondary and social care settings; this data will then be then be "anonymised" or "pseudonymised" prior to publication by the HSCIS or before it is made available to NHS organisations, non-NHS researchers and private companies.
http://www.england.nhs.uk/ourwork/tsd/care-data/
It appears to be against the law for GPs to opt out of the care.data extract scheme:
http://www.pulsetoday.co.uk/your-practice/practice-topics/it/gp-takes-unlawful-decision-to-opt-patients-out-of-caredata-programme/20005018.article
Even if patients opt out of everything their personal confidential data can still be released under Section 251 of the NHS Act 2006:
http://www.pulsetoday.co.uk/your-practice/practice-topics/it/revealed-independent-experts-overseeing-caredata-have-approved-31-releases-of-identifiable-patient-data-since-april/20005572.article
If it means the NHS can raise a bit of cash, then hopefully us taxpayers can get a reprieve from constant tax rises.
However the information flow between Primary & Secondary healthcare is not as good as it could be and that's what needs the investment not this bag "o" crap.
Not at all. You're more than welcome
i opted out of the summary care record database as well, fed up with being asked, when I say no, then it should mean no.
what have foil hats got to do with it? some of us like our privacy and don't like our data being sold to the highest bidder. As for the census, I put as little data on it as I could and what data i did put on there was not correct anyway.
also, i would love to try and read it with their machines, it was a bit crinkled by the time they got it back, with some grease from my toast and a few paw prints from my cat when it fell on the floor. the census that is not the cat