Hi Moll, your doctor is basically a pratt of the first order. I hope that you can manage to change doctor asap. If lay people can tell that a blood test is not what is needed for your husband just now, then surely a doctor should know this.
I had something similar happen to me about four years ago. I suddenly went deaf in one ear during one evening. I went along to see my doctor the following morning and had to see a locum. He was absolutely useless and told me that they wouldn't see me at the ENT dept for a couple of months and that no treatment would do any good. I was stunned by this and in tears, so my husband and I went to the A and E dept. We didn't get on a lot better there as a nurse told me that a doctor would only see me if there was blood coming out of my ear!
Later that afternoon, I got a really nasty phone call from my usual doctor telling me that I shouldn't have gone to A and E and should have trusted that what the locum said was right. He said that I was trying to jump the queue by going to A and E. I was really surprised by his whole attitude when he had always been good with me before.
However, cutting a long story short, because of all this I lost my hearing completely as nothing was done quickly. What should have happened was that I should have been referred within 24 hours to an ENT consultant and started on a special mix of tablets which may well have saved my hearing. I am now permanantely deaf in one ear which causes all kinds of problems.
To give him his due, my GP did eventually apologise to me.
Sorry to go on about all of this, but I am just pointing out how doctors can be and how important it is to push for the right things to happen.
I am thinking about you all the time Moll and the dreadful situation you are in. God bless both you and your husband and also your little cat. My thoughts are with you all.
Hey Moll, I hope you're ok! It sounds to me very much like schizophrenia, triggered by food allergies, I know that might sound bizarre to you, but food allergies (un checked candida overgrowth+leaky gut) can cause all kinds of strange symptoms as undigested proteins make their way to the brain causing brain dysfunction and other nasty effects.
Natasha Campbell has a GAPS book out that covers this subject very well, there's a whole chapter on schizophrenia from what I can remember. Please, whatever you do, do not blame yourself under circumstances, this has nothing to do with you. Although I don't have schizophrenia I've had all sorts of mental problems caused by this, if you want to PM me at time, please feel free to. Hope everything works out for you.
What a despicable man your Dr is Moll. Bloody cheek calling himself a Dr. You should change to a different one quickly. Hope you and your hubby are having a lovely weekend together and please keep coming back with updates so we know you are ok. Give your wee cat a huge hug from me too. Thanks.
Hi Moll, firstly need to say that I am so sorry that you are going through all this. Your husband definitely needs to push for a brain scan. I had very similar symptoms to your husband a few years ago- I was having 'episodes' where I was doing and saying things but I would have no recollection whatsoever- my family would have to tell me what I'd done/said after. I even had a serious car crash and don't even remember it! I could fall asleep at the drop of a hat and felt I could 'sleep the clock round'. My husband and I pushed the GP for a brain scan where it showed I had a tumour. My GP thought I was an idiot when I begged him for a scan- he told me I was wasting my time and NHS money. So hope you both get the help you so desperately need.
My heart goes out to you during this difficult time Moll . Apart from echo all the very helpful responses in this thread concerning your safety and well-being, going by experience with a relative it definitely sounds like your husband may have schizophrenia. Before my relative relapsed a few years ago, remember him sleeping for unusually long periods and saying odd things (mainly conspiracy theories). Please excuse me if it comes across as naive, but from how I've witnessed my relative's illness take hold there's no definitive check-list for symptoms as it affects everyone differently. My advice would be to log his behaviour, and try and maintain a support network even if it's virtual what with the wonders of modern tech.
PM me anytime you want to let off steam, you're bound to have days when things get too much so please don't hesitate in contacting any of us on DS !
Thanks to you all for being so nice - might PM two or three of you in coming days - I really appreciate your concern.
Well, today has been such a mixed bag. If I had posted this at 5pm, I would have told you that my husband hadn't had an "episode" for about three days, and we have had a lovely day out in Eastbourne (quite close to where we live in Brighton), doing our favourite thing of going round antiquarian and second-hand book-shops, treating ourselves to some lovely dusty old books, and generally having a nice time and getting on really well. All of which remains true.
However, you know the saying "it never rains but it pours.................." Just after we got home, we got a phone call to say my husband had to rush round to his elderly aunt's (she's in her late eighties) because there was something wrong with her. That was about five hours ago, and although he hasn't called me himself yet, his mum has just called me to say that he had to call an ambulance and accompany his aunt to hospital. Which is, presumably, where they still are. Have no idea what is wrong with her, but have a horrible sense of foreboding. If she dies, he'll be there when she does. (Though maybe I'm being overly pessimistic and jumping the gun..............)
BUT, if she were to die, this would be exactly what happened when my husband's uncle - this aunt's husband - died two months ago. My hubbie spent the night at the hospital with them, and was there when he passed away (from heart problems - which is why I, newly diagnosed with Heart Failure, refused to go to the funeral, as it felt too close to the bone)
So I'm hoping to Goodness that, whatever happens tonight, it won't tip my husband into another funny turn. I just don't know what's going on. He could turn up in five minutes and say she's OK. Or he might not get in until breakfast time and say that she's died.
5 MINUTES LATER - MY HUSBAND HAS JUST CALLED. Thank goodness for that. He sounded fine, and I feel greatly relieved. His aunt is ill but not at death's door. He doesn't know yet when he'll be home - he might spend the night at her house - but, touch wood, he really did sound OK. Phew.
This is all so bizarre. Me and my heart disease, my husband's baffling behaviour, his uncle's death and now his aunt's illness.........................not to mention my brother's twins being born prematurely a few weeks ago and spending their first week in intensive care (but they're fine now) and my sister's leaving her husband for another man, which has really rocked the family boat. Oh, and my husband's parents having very severe health problems..............
But what can you do? You can let it grind you down or refuse not to. I think I'm going to curl up on the bed with my cat and read one of the great books I bought earlier.
Will keep you posted about what happens. Thanks so much for reading.
All the very best to all of you, and a good night's sleep.
hi Moll, just a quick question.....has either social Services or the police mentioned the domestic violence team in your area?
I know the actions your hubby has displayed are not intentional but quite rightly have to be taken seriously , sometimes the DV team can get panic alarms fitted in homes, if you had a panic alarm by the bed it may help you feel a little more secure. I think they link straight to the police station so you would get a quick response.
Let's hope the neuro appointment and results comes through quickly and they find something to explain his behaviour and can medicate to control it.
it sounds to me that your GP quite rightly had a telling off from the police for only following up your hubby in 3 weeks! Please, please if you dont get the answers you need carry on pestering the relevant people, incompetent gp included. It can be a battle to get to the right person be it a nuerologist or psychologist. Dont feel a nuisance you and your hubby deserve better.
its always going to happen on an open forum, its not worth getting upset over please ignore the comments and take comfort from the support of others. its not worth storming off, get your butt back here.
OK, I agree with you Janet, and with the others who've told me not to let the couple of arseholes send me packing. With hindsight, I got over-upset by those comments, and over-reacted to them - something I've been prone to doing ever since being diagnosed with Heart Failure, as, however positive I might seem on the outside, on the inside, I'm downright scared. It's screwed me up a bit, I think. But the emotional effects are gradually subsiding. It's just that everything seems to come at once, you know?
Anyway, you're right, the vast majority of people on here have been hugely supportive, and if one or two others are not, I shouldn't let them scare me away.
As for you two trolls, having thought about it, I take it as a kind of compliment that you consider my posts sufficiently well-written that you suspect I'm actually writing fiction. But nonetheless, you know what they say, fact is stranger than fiction, and everything I've written has not been the work of "a frustrated crime author" but what my life has been over the last few months.
Thanks again all you very nice people. And those of you who aren't nice, crawl away back into your sorry little holes.
Moll, please don't let the trolls on here make you resign. They are just not worthy of getting upset over. We are all here for you and thinking of you and are anxious to know what is happening. I am worrying about you and feel I can't cope with not knowing how things progress with the dreadful situation you are in.
Just because of the bad few, please don't give up on all of us who care about your and yours.
OK, I agree with you Janet, and with the others who've told me not to let the couple of arseholes send me packing. With hindsight, I got over-upset by those comments, and over-reacted to them - something I've been prone to doing ever since being diagnosed with Heart Failure, as, however positive I might seem on the outside, on the inside, I'm downright scared. It's screwed me up a bit, I think. But the emotional effects are gradually subsiding. It's just that everything seems to come at once, you know?
Anyway, you're right, the vast majority of people on here have been hugely supportive, and if one or two others are not, I shouldn't let them scare me away.
As for you two trolls, having thought about it, I take it as a kind of compliment that you consider my posts sufficiently well-written that you suspect I'm actually writing fiction. But nonetheless, you know what they say, fact is stranger than fiction, and everything I've written has not been the work of "a frustrated crime author" but what my life has been over the last few months.
Thanks again all you very nice people. And those of you who aren't nice, crawl away back into your sorry little holes.
Moll
Im not surprised you reacted as you did, i would have to, at the moment though youve got some good friends on here who are supporting as best they can. Heart Failure is an awful dagnosis and you should be proud of yourself with how you are managing that, do you have a Heart Failure nurse team were you are for support with your condtion? The British Heart Foundation have some good resourses to.
Put those other comments away dont spend time thinking anymore about them.
oh Moll please dont let people upset you further, you've been through such a lot worse. Please make sure that you write down what your dr did and said and make a complaint, cos he sounds completely incompetent!
keep your head up love, you're doing so well.
Your husband sounds very unwell, the excessive sleeping, the personality changes, the inexplicable threats of violence. Go back to the GP. He needs assessing properly, by a mental health professional, and a neurologist, at the very least.
Tell friends and family what's going on, enlist their support.
Totally agree with you.
Moll you have to 'demand' that he gets help NOW before something does happen and pray it does not.
Not sure I agree about the police being involved as they will only have your word for that and you said your husband did not believe there was anything wrong so that could make matters worse and tip your husband over the edge.
Please take care x
ps. Sorry.. I have not read to the end of the thread which I should have before I posted but you post has shocked me x
Your doctor's attitude is shocking Moll, and he deserves to be struck off. What is the world coming to when you get a more sympathetic response from the police than from your GP?
I hope everything remains calm and they get to the problem of what's wrong with your husband. In the meantime, stay safe and make sure your phone is to hand at all times, just in case.
Moll riise above the idiots who come to ridicule and mock . Leave them to it and ignore . I hope this new week will be a better one and you find help wherever you can.
Keep chatting here and writing down can be often very helpful.
Moll.
Firstly, your GP's behaviour is atrocious. I'm so sorry that on top of all the heartache you're going through, you're having to deal with that. How dare he speak to you in this way, as if you're not going through enough? Maybe he's on the defensive because the police and SS have questioned his motivations for not being more proactive. As you suggest, a knock to his ego. Tough. He was wrong and needs to suck it up. He's a GP, not God. He might be a good GP but seems hopelessly out of his depth with mental health issues. Sounds like he was looking forward to a couple of carefree weeks on his jollies and someone peed on his bonfire. That is not your fault, nor your responsibility and he had no business taking it out on you as he did. If you don't decide to change doctor, I would have it out with him, when you can find the strength.
Because he is clearly not an expert, this is why you need a more specialist analysis of what's actually happening, with any physiological issue taken into account/ ruled out. I mentioned, earlier in the thread, that a GP more or less told my mum to pull herself together and be more positive when she was in the grip of serious depressive psychosis. Mum took an overdose two days later and ended up as a psychiatric inpatient for months.
I'm aware that people are recognizing that some of Moll's hubby's symptoms are very similar to those experienced by people close to them but I don't think it's helping (self included) to be trying to diagnose or put labels on what might be happening, here. As I also said earlier, this might need careful investigation which could take some time. The important thing is to get these wheels in motion.
As for the couple of posters who made cruel and cutting remarks about your posts. They are representative of cynical know-it-alls who get an inflated sense of self-importance by thinking that they can 'out' those who they consider to be making things up. They're clearly incapable of understanding that your posting on here is a way of trying to make sense of what's happening, offloading your anxieties and needing a bit of support - all perfectly legitimate and more worthy than getting off on playing judge and jury. Ignore them. We know that you're a longstanding, reliable DS member and I've personally seen and experienced things in life which others would consider ridiculous if I related them online. Don't be put off...we'll all just point and tut instead, eh?
Sorry, have multi-edited this so apologies if these seem to have been two or three versions
Moll, without meaning to sound like a 'troll' as I'm really not, I do slightly agree with the posters about sharing all this on the internet. Only because there's a good chance someone might see this? Your husband perhaps if he were to look at your internet history or does he not mind? If so then just ignore this post but I've posted things online that have come back to haunt me that's all! I hope you can get it sorted though, best of luck!
Comments
I had something similar happen to me about four years ago. I suddenly went deaf in one ear during one evening. I went along to see my doctor the following morning and had to see a locum. He was absolutely useless and told me that they wouldn't see me at the ENT dept for a couple of months and that no treatment would do any good. I was stunned by this and in tears, so my husband and I went to the A and E dept. We didn't get on a lot better there as a nurse told me that a doctor would only see me if there was blood coming out of my ear!
Later that afternoon, I got a really nasty phone call from my usual doctor telling me that I shouldn't have gone to A and E and should have trusted that what the locum said was right. He said that I was trying to jump the queue by going to A and E. I was really surprised by his whole attitude when he had always been good with me before.
However, cutting a long story short, because of all this I lost my hearing completely as nothing was done quickly. What should have happened was that I should have been referred within 24 hours to an ENT consultant and started on a special mix of tablets which may well have saved my hearing. I am now permanantely deaf in one ear which causes all kinds of problems.
To give him his due, my GP did eventually apologise to me.
Sorry to go on about all of this, but I am just pointing out how doctors can be and how important it is to push for the right things to happen.
I am thinking about you all the time Moll and the dreadful situation you are in. God bless both you and your husband and also your little cat. My thoughts are with you all.
Hey Moll, I hope you're ok! It sounds to me very much like schizophrenia, triggered by food allergies, I know that might sound bizarre to you, but food allergies (un checked candida overgrowth+leaky gut) can cause all kinds of strange symptoms as undigested proteins make their way to the brain causing brain dysfunction and other nasty effects.
Natasha Campbell has a GAPS book out that covers this subject very well, there's a whole chapter on schizophrenia from what I can remember. Please, whatever you do, do not blame yourself under circumstances, this has nothing to do with you. Although I don't have schizophrenia I've had all sorts of mental problems caused by this, if you want to PM me at time, please feel free to. Hope everything works out for you.
PM me anytime you want to let off steam, you're bound to have days when things get too much so please don't hesitate in contacting any of us on DS
Thanks to you all for being so nice - might PM two or three of you in coming days - I really appreciate your concern.
Well, today has been such a mixed bag. If I had posted this at 5pm, I would have told you that my husband hadn't had an "episode" for about three days, and we have had a lovely day out in Eastbourne (quite close to where we live in Brighton), doing our favourite thing of going round antiquarian and second-hand book-shops, treating ourselves to some lovely dusty old books, and generally having a nice time and getting on really well. All of which remains true.
However, you know the saying "it never rains but it pours.................." Just after we got home, we got a phone call to say my husband had to rush round to his elderly aunt's (she's in her late eighties) because there was something wrong with her. That was about five hours ago, and although he hasn't called me himself yet, his mum has just called me to say that he had to call an ambulance and accompany his aunt to hospital. Which is, presumably, where they still are. Have no idea what is wrong with her, but have a horrible sense of foreboding. If she dies, he'll be there when she does. (Though maybe I'm being overly pessimistic and jumping the gun..............)
BUT, if she were to die, this would be exactly what happened when my husband's uncle - this aunt's husband - died two months ago. My hubbie spent the night at the hospital with them, and was there when he passed away (from heart problems - which is why I, newly diagnosed with Heart Failure, refused to go to the funeral, as it felt too close to the bone)
So I'm hoping to Goodness that, whatever happens tonight, it won't tip my husband into another funny turn. I just don't know what's going on. He could turn up in five minutes and say she's OK. Or he might not get in until breakfast time and say that she's died.
5 MINUTES LATER - MY HUSBAND HAS JUST CALLED. Thank goodness for that. He sounded fine, and I feel greatly relieved. His aunt is ill but not at death's door. He doesn't know yet when he'll be home - he might spend the night at her house - but, touch wood, he really did sound OK. Phew.
This is all so bizarre. Me and my heart disease, my husband's baffling behaviour, his uncle's death and now his aunt's illness.........................not to mention my brother's twins being born prematurely a few weeks ago and spending their first week in intensive care (but they're fine now) and my sister's leaving her husband for another man, which has really rocked the family boat. Oh, and my husband's parents having very severe health problems..............
But what can you do? You can let it grind you down or refuse not to. I think I'm going to curl up on the bed with my cat and read one of the great books I bought earlier.
Will keep you posted about what happens. Thanks so much for reading.
All the very best to all of you, and a good night's sleep.
Lots of love
Moll
x
http://www.amazon.co.uk/Gut-Psychology-Syndrome-Depression-Schizophrenia/dp/0954852028/ref=sr_1_1?ie=UTF8&qid=1394927174&sr=8-1&keywords=gaps+diet
I know the actions your hubby has displayed are not intentional but quite rightly have to be taken seriously , sometimes the DV team can get panic alarms fitted in homes, if you had a panic alarm by the bed it may help you feel a little more secure. I think they link straight to the police station so you would get a quick response.
Let's hope the neuro appointment and results comes through quickly and they find something to explain his behaviour and can medicate to control it.
Take care
But I do actually believe you Moll, it sounds like you're having a sh(t time right now
it sounds to me that your GP quite rightly had a telling off from the police for only following up your hubby in 3 weeks! Please, please if you dont get the answers you need carry on pestering the relevant people, incompetent gp included. It can be a battle to get to the right person be it a nuerologist or psychologist. Dont feel a nuisance you and your hubby deserve better.
take care x
Moll please stay and let us know what is going on and that you get the help you need...
Do not let these (I can't actually think of a word I can print) irritate you.
OK, I agree with you Janet, and with the others who've told me not to let the couple of arseholes send me packing. With hindsight, I got over-upset by those comments, and over-reacted to them - something I've been prone to doing ever since being diagnosed with Heart Failure, as, however positive I might seem on the outside, on the inside, I'm downright scared. It's screwed me up a bit, I think. But the emotional effects are gradually subsiding. It's just that everything seems to come at once, you know?
Anyway, you're right, the vast majority of people on here have been hugely supportive, and if one or two others are not, I shouldn't let them scare me away.
As for you two trolls, having thought about it, I take it as a kind of compliment that you consider my posts sufficiently well-written that you suspect I'm actually writing fiction. But nonetheless, you know what they say, fact is stranger than fiction, and everything I've written has not been the work of "a frustrated crime author" but what my life has been over the last few months.
Thanks again all you very nice people. And those of you who aren't nice, crawl away back into your sorry little holes.
Moll
Just because of the bad few, please don't give up on all of us who care about your and yours.
Put those other comments away dont spend time thinking anymore about them.
keep your head up love, you're doing so well.
take care xxx
Totally agree with you.
Moll you have to 'demand' that he gets help NOW before something does happen and pray it does not.
Not sure I agree about the police being involved as they will only have your word for that and you said your husband did not believe there was anything wrong so that could make matters worse and tip your husband over the edge.
Please take care x
ps. Sorry.. I have not read to the end of the thread which I should have before I posted but you post has shocked me x
I hope everything remains calm and they get to the problem of what's wrong with your husband. In the meantime, stay safe and make sure your phone is to hand at all times, just in case.
Keep chatting here and writing down can be often very helpful.
Firstly, your GP's behaviour is atrocious. I'm so sorry that on top of all the heartache you're going through, you're having to deal with that. How dare he speak to you in this way, as if you're not going through enough? Maybe he's on the defensive because the police and SS have questioned his motivations for not being more proactive. As you suggest, a knock to his ego. Tough. He was wrong and needs to suck it up. He's a GP, not God. He might be a good GP but seems hopelessly out of his depth with mental health issues. Sounds like he was looking forward to a couple of carefree weeks on his jollies and someone peed on his bonfire. That is not your fault, nor your responsibility and he had no business taking it out on you as he did. If you don't decide to change doctor, I would have it out with him, when you can find the strength.
Because he is clearly not an expert, this is why you need a more specialist analysis of what's actually happening, with any physiological issue taken into account/ ruled out. I mentioned, earlier in the thread, that a GP more or less told my mum to pull herself together and be more positive when she was in the grip of serious depressive psychosis. Mum took an overdose two days later and ended up as a psychiatric inpatient for months.
I'm aware that people are recognizing that some of Moll's hubby's symptoms are very similar to those experienced by people close to them but I don't think it's helping (self included) to be trying to diagnose or put labels on what might be happening, here. As I also said earlier, this might need careful investigation which could take some time. The important thing is to get these wheels in motion.
As for the couple of posters who made cruel and cutting remarks about your posts. They are representative of cynical know-it-alls who get an inflated sense of self-importance by thinking that they can 'out' those who they consider to be making things up. They're clearly incapable of understanding that your posting on here is a way of trying to make sense of what's happening, offloading your anxieties and needing a bit of support - all perfectly legitimate and more worthy than getting off on playing judge and jury. Ignore them. We know that you're a longstanding, reliable DS member and I've personally seen and experienced things in life which others would consider ridiculous if I related them online. Don't be put off...we'll all just point and tut instead, eh?
Sorry, have multi-edited this so apologies if these seem to have been two or three versions