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Shaking and looking weird when around other people
I have been a bit down lately but also a bit paranoid around people. I have a disability called myoclonus dystonia and it causes the upper part of my body to twitch/shake uncontrollably. Over the last few weeks I have been going for a drink in Mcdonalds, KFC, Subway and other places because I have an alcohol problem so choose to drink soft drinks when i'm out. I go into these places either at lunch time or during the afternoon/evening and when I went into Mcdonalds today my shaking was quite bad. When I go in I always get the staff to take my drink over to the table incase I drop it or spill it. I get all the kids staring at me sometimes and today my shaking was quite bad which draws their attention to me. I felt uncomfortable and feel like I am doing something wrong by going into these places every day and shaking/getting the staff to help me.Am I being silly, like should I go into these places knowing that I shake and draw attention to myself? This is probably going to sound really daft but sometimes I feel like one day someone might report me to the police for shaking and looking really weird when I go into these places especially when there are kids around. I need some advice please :(:(
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The last I heard there was no law about going out in public with a disability, so carry on!
Ive got Vasculitis all over my face and scalp I dont have hair just loads of boils I look like gollum's wife.theres sometimes I cant cover over and thats when the fun begins.
IVe had people saying should i be out? is it catching..i am scaring the child thats with them you name it ive had it.As for the stares I think I would have less if I worse some Comedy outfit.
Its very hard and yes its easy to write here and I would be a liar ifI said at times its gotten me so down I would rather stay in.But once you do that its going to be even harder going out.
what I found helped me try going out a wee bit earlier so that you get used to being out and built it up slowly like that.It does help Also if possible see if you can get a friend or Family member to come out a few times also its a very slow process and it will take a while.Im now in the state of mind after a very bad incident last week if people are that SAD thats all they can do is comment.stare and laugh I wish my bloody life was that boring.I truly wish you well xxx
Of course you should carry on going where you want to go . Over the years I have learned one thing about kids .They are naturally curious and also very willing to accept once anything is explained .So if you feel you ever can, simply tell them its an illness that makes you shake and you might one day need a helping hand and hope they can help you .
ive always found children amazing its the 50+ range of people seem to be the ones in need of some manners.
I am 50+ and have lovely manners .:)
Nothing in the OP to say that he eats anything in these places, nor that he has a weight problem.
I agree that young people are more likely to be mildly curious about your condition rather than negative about it.
Remember that many of them are likely themselves to have relatives with roughly comparable afflictions of one sort or another.
^^^This is great advice.^^^
OP please don't feel like you shouldn't be going out to these places, you have just as much right to be there as anyone else - unfortunately people will always stare at anyone or anything different. Would it help if you took a newspaper or book with you to read while you have your drink, so you don't notice people looking at you so much or is the shaking so bad that you wouldn't be able to do that?
He said he goes to the places mentioned to have a drink, he didn't say anything about eating there.
ever?
His post says he goes to have a soft drink, he doesn't mention food whatsoever so what has food got to do with anything?
I am limited to what I can have in these places because the more I use my hands and concentrate the worse the condition is. I can have a drink with the lid on with a straw and I can just about handle fries without any sauces but that's about it really. I cannot have burgers or anything saucey because of the mess i'd make trying to eat it. The main reason though for going into these places is to have a socialable drink, I very rarely have food.
I'd just like to relate a little story that truly lifted my heart last week and gives me hope that there are lovely kids around. I was waiting for a presecription in the pharmacy and a boy of around 10-12 was with his Mum, waiting too. He looked out of the window and this conversation ensued -
Boy - 'Mum, Pat's outside'
Mum - 'Pat who?'
Boy - 'Tony's Pat'
Mum - 'Oh, you mean wheelchair Pat'
Boy (voice rising, hands in air) - 'No, Tony's Pat!'
Obviously he thought it wrong to describe a person by means of being in a wheelchair - it was all I could do from sticking my nose in and telling him what a lovely young man he was. I hope this will help to put across that not all kids are bad mannered and some really are thoughtful and kind.