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Police search for missing boy with brain tumour removed from hospital by his parents

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    [Deleted User][Deleted User] Posts: 3,749
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    This petition will, quite rightly, fail and the governments of the UK and Spain, to their credit, will ignore it.

    The parents are in a place entirely of the their own making and now due process of law in Spain and the UK must prevail. The best thing for that sick child right now would probably be repatriation to the UK via air ambulance and transfer the world-renowned centre of paediatric medicine that is Great Ormond Street Hospital. That ought to be the sane medical priority instead of all this emotive shroud waving on behalf of a couple of very irresponsible adults.

    At the moment at least 40000 people disagree with you.
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    grauniadgrauniad Posts: 7,957
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    This petition will, quite rightly, fail and the governments of the UK and Spain, to their credit, will ignore it.

    The parents are in a place entirely of the their own making and now due process of law in Spain and the UK must prevail. The best thing for that sick child right now would probably be repatriation to the UK via air ambulance and transfer the world-renowned centre of paediatric medicine that is Great Ormond Street Hospital. That ought to be the sane medical priority instead of all this emotive shroud waving on behalf of a couple of very irresponsible adults.

    As far as I can see, the efforts of those appalled by this case are mainly through concern for the child, not the parents. The child has done no wrong.
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    TelevisionUserTelevisionUser Posts: 41,417
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    Chocdoc wrote: »
    At the moment at least 40000 people disagree with you.

    They're all being way too irrational and emotive when detached judgements and decisions are what is required right now. In all probability, very few medics or nurses will sign that petition which will fail anyway not least because it's actually the wrong approach to take in this instance.

    Earlier on this year, l took a day off to support someone who was going for a consultation with a specialist at the main city hospital in order to advise them, interpret the medical language and to ask pertinent questions (if I'd been asked, I'd have been willing to give up my time to help these parents too but they chose entirely the wrong path to follow).
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    Parker45Parker45 Posts: 5,854
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    magratx wrote: »
    A consultant having a snit at being questioned, and a heavy handed police chief

    Unfortunately that's the sort of remark that we get when an issue is being totally clouded by emotion and prejudice and the idea that the "little people" know better than the professionals.

    The TV news channels have performed a huge disservice in encouraging this outpouring of emotion by broadcasting constant interviews with the family members, resulting in this understandable emotion but with little regard for highlighting what is really important i.e. the most appropriate medical treatment for the child.

    This also highlights the problems of the internet where people become convinced that their own website research makes them think they are experts. How many cases have we heard of in the past where people put their faith in what they've read on-line, with ultimately no better success in treatment.
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    blackcat1blackcat1 Posts: 281
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    grauniad wrote: »
    As far as I can see, the efforts of those appalled by this case are mainly through concern for the child, not the parents. The child has done no wrong.

    Agree completely , the little boy has had his family with him all his life - including the time in hospital and I can't bear to think how bewildered he must be without them around him
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    imogenkateimogenkate Posts: 2,657
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    This petition will, quite rightly, fail and the governments of the UK and Spain, to their credit, will ignore it.

    The parents are in a place entirely of the their own making and now due process of law in Spain and the UK must prevail. The best thing for that sick child right now would probably be repatriation to the UK via air ambulance and transfer the world-renowned centre of paediatric medicine that is Great Ormond Street Hospital. That ought to be the sane medical priority instead of all this emotive shroud waving on behalf of a couple of very irresponsible adults.

    i fail to see how taking the child to gosh will help.if we dont do the procedure in the uk,we dont.gosh cant help.i think the best outcome is for the parents to be reunited with their child.and a plan as to whats acceptable for all concerned,with the emphasis on the childs needs,now,and in the future addressed.
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    mike1948mike1948 Posts: 2,157
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    benjamini wrote: »
    It was reported earlier the parents had communicated with the hospital on the 20th. Then there was also a report that the Southampton hospital would not release the scans to the hospital . So I think there is still a problem with this. Perhaps this treatment is not right for the child's type of tumour and conventional treatment would be more successful. It's how this was communicated to the parents seems to be one of the issues.

    A British doctor with experience of the condition the boy has said on TV that proton beam therapy is not suitable for every case.

    I think this case shows the danger of the internet. The parents obviously want to get the best treatment for the boy, so they look up his condition using Google. Having read a bit about the therapy, which is still in the trial process, this encourages them to try to get it for him, ignoring doctors who say it is not suitable for the child. The Southampton hospital even offered the parents a second opinion from another doctor..
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    benjaminibenjamini Posts: 32,066
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    mike1948 wrote: »
    A British doctor with experience of the condition the boy has said on TV that proton beam therapy is not suitable for every case.

    I think this case shows the danger of the internet. The parents obviously want to get the best treatment for the boy, so they look up his condition using Google. Having read a bit about the therapy, which is still in the trial process, this encourages them to try to get it for him, ignoring doctors who say it is not suitable for the child. The Southampton hospital even offered the parents a second opinion from another doctor..

    As I have said several times we don't know what treatment will suit this child. But if communication breaks down between clinicians and a medical team who handle and deal with these situations daily , and the parents, I would hold the medical team responsible for that breakdown and not the tired shocked and traumatised parents who have been devastated by the diagnosis, the surgery and the prognosis. It should never ever have reached the situation where these parents had a huge loss of faith and confidence in the medical team. They should not have to be researching alternative therapy and they should not be threatened with having their child removed from their care. This all suggests to me a failing on the oncology team at the hospital. The hospital may be correct. They did not handle it correctly IMO.
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    nethwennethwen Posts: 23,374
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    This petition will, quite rightly, fail and the governments of the UK and Spain, to their credit, will ignore it.

    The parents are in a place entirely of the their own making and now due process of law in Spain and the UK must prevail. The best thing for that sick child right now would probably be repatriation to the UK via air ambulance and transfer the world-renowned centre of paediatric medicine that is Great Ormond Street Hospital. That ought to be the sane medical priority instead of all this emotive shroud waving on behalf of a couple of very irresponsible adults.

    And what law would that be, pray tell?

    The only laws restricting patients from voluntarily removing themselves from a hospital (or parents, especially in Ashya's case) are those patients detained under the Mental Health Act.

    You seem quite determined that your will should prevail over this case and that you should have been consulted yourself over the issue. For whatever reasons only you yourself know.
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    jacquelineannejacquelineanne Posts: 1,692
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    The boy had only just had an operation, so it was quite negligent of the parents to just take him out of his hospital bed and travel to Spain with no medical support.

    Having said that it does seem cruel to the child to separate him from his parents in a foreign country. At least let them visit him under supervision.
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    jesayajesaya Posts: 35,597
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    mike1948 wrote: »
    A British doctor with experience of the condition the boy has said on TV that proton beam therapy is not suitable for every case.

    I think this case shows the danger of the internet. The parents obviously want to get the best treatment for the boy, so they look up his condition using Google. Having read a bit about the therapy, which is still in the trial process, this encourages them to try to get it for him, ignoring doctors who say it is not suitable for the child. The Southampton hospital even offered the parents a second opinion from another doctor..

    Why not send his records to the Czech clinic for assessment - they are the experts and can assess whether it is an option or not. The clinic has said they are just waiting for the records from the UK - what possible harm could there be by asking?

    The treatment must be accepted as the NHS is building two centres in the UK

    http://www.cancerresearchuk.org/about-us/cancer-news/news-report/manchester-and-london-proton-beam-therapy-units-confirmed

    and the clinic say they already work with the NHS.
    .
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    nethwennethwen Posts: 23,374
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    mike1948 wrote: »
    A British doctor with experience of the condition the boy has said on TV that proton beam therapy is not suitable for every case.

    I think this case shows the danger of the internet. The parents obviously want to get the best treatment for the boy, so they look up his condition using Google. Having read a bit about the therapy, which is still in the trial process, this encourages them to try to get it for him, ignoring doctors who say it is not suitable for the child. The Southampton hospital even offered the parents a second opinion from another doctor..

    BIB - And neither is chemotherapy and/or radiotherapy.

    Medicine is not and never will be infallible, especially concerning adverse side effects.
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    TelevisionUserTelevisionUser Posts: 41,417
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    nethwen wrote: »
    And what law would that be, pray tell?

    The only laws restricting patients voluntarily removing themselves from a hospital (or parents, especially in Ashya's case) are those patients detained under the Mental Health Act.

    You seem quite determined that your will should prevail over this case and that you should have been consulted yourself over the issue. For whatever reasons only you yourself know.

    Due process of law should now prevail and politicians, governments and everyone else should stay right out of the situation. As for the child, he should get the best possible treatment and care that British medicine can offer.
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    nethwennethwen Posts: 23,374
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    Due process of law should now prevail and politicians, governments and everyone else should stay right out of the situation. As for the child, he should get the best possible treatment and care that British medicine can offer.

    Yet you cannot tell me what that law is, I see.
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    [Deleted User][Deleted User] Posts: 8,510
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    Wish the authorities had been as quick to discover REAL domestic issues.. Baby P and another missing child who I shant name.
    These loving parents and child should be reunited ... its a no brainer
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    benjaminibenjamini Posts: 32,066
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    Due process of law should now prevail and politicians, governments and everyone else should stay right out of the situation. As for the child, he should get the best possible treatment and care that British medicine can offer.

    In a Spanish hospital ? What about the hundred children sent to North America for the best possible treatment the UK could not in fact provide? Sent on The NHS at a cost of 100k per child ?
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    imogenkateimogenkate Posts: 2,657
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    Due process of law should now prevail and politicians, governments and everyone else should stay right out of the situation. As for the child, he should get the best possible treatment and care that British medicine can offer.

    its quite often british medicine can not offer the best for certain cases.in those cases parents should be allowed to chose alternatives.british medicine isnt always the best.
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    [Deleted User][Deleted User] Posts: 4,044
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    mike1948 wrote: »
    A British doctor with experience of the condition the boy has said on TV that proton beam therapy is not suitable for every case.

    I think this case shows the danger of the internet. The parents obviously want to get the best treatment for the boy, so they look up his condition using Google. Having read a bit about the therapy, which is still in the trial process, this encourages them to try to get it for him, ignoring doctors who say it is not suitable for the child. The Southampton hospital even offered the parents a second opinion from another doctor..

    So if it's still a trial process why are the UK spending £250 million building two new centres and why have Clatterbridge been using it for eye cancer for years
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    duckyluckyduckylucky Posts: 13,864
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    You'd do anything wouldn't you - absolutely anything.

    I can only assume that those decrying these parents for 'irrational behaviour' are not yet parents themselves.

    There are wards full of kids in oncology units all over Uk and Ireland and Europe . Many with the same sad desperation . And none of them feel it appropriate to put the child in a car and drive without telling anyone
    I am not condemning these parents , I am simply saying they are not the only ones faced with this sadness
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    benjaminibenjamini Posts: 32,066
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    magratx wrote: »
    So if it's still a trial process why are the UK spending £250 million building two new centres and why have Clatterbridge been using it for eye cancer for years

    And why are we sending children abroad for this very treatment?
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    jesayajesaya Posts: 35,597
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    Due process of law should now prevail and politicians, governments and everyone else should stay right out of the situation. As for the child, he should get the best possible treatment and care that British medicine can offer.

    An important part of that care is for the child to have his family close by. There is also more medicine available across the world - which is why the NHS send people to Europe and the US for treatments not available here.

    As for people keeping out of it - why? Why should people not speak out if they see something they consider unjust? Do you have so much confidence in every aspect of law and government that nothing would ever make you speak out when you think they are doing something wrong?
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    jesayajesaya Posts: 35,597
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    benjamini wrote: »
    And why are we sending children abroad for this very treatment?

    From reading that site it looks like the kit is only available to treat eye cancers, hence the two new sites.
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    benjaminibenjamini Posts: 32,066
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    duckylucky wrote: »
    There are wards full of kids in oncology units all over Uk and Ireland and Europe . Many with the same sad desperation . And none of them feel it appropriate to put the child in a car and drive without telling anyone
    I am not condemning these parents , I am simply saying they are not the only ones faced with this sadness

    Perhaps the clinicians and oncology team were perhaps more sympathetic , or more explanatory, or less confrontational. This situation has arisen through a communication breakdown. That takes 2 parties. One trained in such matters.
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    GeneralissimoGeneralissimo Posts: 6,289
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    nethwen wrote: »
    Yet you cannot tell me what that law is, I see.

    They were arrested on suspicion of neglect, clearly a trumped up false charge.
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    duckyluckyduckylucky Posts: 13,864
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    They were arrested on suspicion of neglect, clearly a trumped up false charge.

    How does everybody seem KNOW this as fact ???everyone seems to know they are loving parents and its all false and yet no one knows the full picture or the case at alll ?
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