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My partner had a Stroke last night. I need some help.

SmiirkySmiirky Posts: 1,940
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Hello, I've just got home from being in the hospital since midnight last night, my partner who's 35 had a stroke. I'm 20, i've never had to deal with a situation like this before. He's lost the ability to talk (he's a natural chatterbox), and his right side is damaged, I'm trying to help but I just seem to frustrate him.
I'm extremely emotional at the moment and even saying the word sets me off, I just wondered if anyone had dealt with Strokes before and if they had any advice for me, because i'm just really scared and I feel hopeless.
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    shmiskshmisk Posts: 7,963
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    bless you this must be awful for you!

    its not easy but its early doors - the most essential is early treatment and a lot of people can recover after strokes.

    is he in a specialist unit?
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    SmiirkySmiirky Posts: 1,940
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    shmisk wrote: »
    bless you this must be awful for you!

    its not easy but its early doors - the most essential is early treatment and a lot of people can recover after strokes.

    is he in a specialist unit?

    Yes he's in the stroke ward at Southampton General..Everyone keeps telling me, "he'll get speech therapy, he'll be fine again soon"..But it doesn't feel like that to me, I don't feel like I have him any more..It's like it's someone else.
    Even thinking about him being in there while i'm sat at home makes me feel guilty, I need rest, but I need to be with him too..I can't help feeling so bloody frustrated and useless.. :'(
    Seeing him the way he is breaks my heart, but I can't cry because he'll cry..Hence why i'm letting it all out now, I just want him back :(
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    [Deleted User][Deleted User] Posts: 5,565
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    Call your council and talk adult social services and ask them for help.
    The hospital may set something up before your partner leaves.
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    [Deleted User][Deleted User] Posts: 12,881
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    You poor thing - that must have been such a shock. My friend had a stroke when she was 30 and in the house alone with two small children. So it is not unknown at that age. She was very poorly indeed but has made a full recovery. As shmisk says early treatment is essential as it increases the degree of recovery. The Stroke Foundation is very good and they have a helpline. It may help you just to chat things through?

    Stroke Helpline on 0303 303 3100 open Monday to Friday, 9am to 5pm.

    Big hugs and hope your partner makes a full and speedy recovery. The frustration is very natural and he will also be very scared. Just be loving and caring - it's all you can really do right now.
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    [Deleted User][Deleted User] Posts: 12,881
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    Smiirky wrote: »
    Yes he's in the stroke ward at Southampton General..Everyone keeps telling me, "he'll get speech therapy, he'll be fine again soon"..But it doesn't feel like that to me, I don't feel like I have him any more..It's like it's someone else.
    Even thinking about him being in there while i'm sat at home makes me feel guilty, I need rest, but I need to be with him too..I can't help feeling so bloody frustrated and useless.. :'(
    Seeing him the way he is breaks my heart, but I can't cry because he'll cry..Hence why i'm letting it all out now, I just want him back :(

    He IS still there. Just unable to express himself. My friend was exactly the same and now she is the busy mum of two lively kids. Honestly, people can come back from this.
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    SmiirkySmiirky Posts: 1,940
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    He IS still there. Just unable to express himself. My friend was exactly the same and now she is the busy mum of two lively kids. Honestly, people can come back from this.

    I know, i'm holding onto that thought..It just seems so far away right now, and I feel like anything I do just isn't enough..Or isn't helping. I just want to hold him in my arms and not let go and tell him it'll be okay..I'm just not used to feeling so useless..
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    [Deleted User][Deleted User] Posts: 103
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    Im so sorry Smirky, I havent had any dealings so know nothing about strokes, but Stargazers info seems good, also, why dont you ask the nurses on his ward if they have any information that might help you? also, if his doctor knows how upset you are he may take you aside and give you some practical advice that would give you some hope, because whilst your feeling hopeless and helpless, that might be helpful and make you feel a bit better.
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    ElanorElanor Posts: 13,326
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    It's very very early days, so please don't panic. I'm assuming he's getting clot busting drugs and so on, that'll prevent any further strokes. Stroke patients usually make dramatic improvements in the first week or so, and then further long term improvements for months after that. My dad had a stroke three years ago, and initially he was awful - couldn't talk, couldn't sit up, had no idea what was going on and so on. This was partly the stroke and partly the drugs they put him on. Within a few days he was looking more alert and within days his speech gradually started coming back.

    Right now he needs rest and the drugs as his brain starts to repair the first connections. Don't feel guilty about needing rest - you can do very little by being there, he'll be extremely tired if not asleep, and will likely be unaware of what's going on. You can't do much by being there all the time - get some rest and pop in to see him for brief visits. Long visits are often too tiring for stroke patients anyway in the initial days.

    The brain is a very clever organ, it repairs extremely well, it just needs time and rest, and in the first days after a stroke, it mostly shuts down to essential things only so that it can repair itself. My dad is partially disabled now, but he's a lot older than your partner, but his speech and understanding is fine, and that came back fairly soon after the stroke (within the first week, although it took a few months to be back to normal).

    Edit: Also, you say his right side is damaged, do you mean right brain stroke, or right side of his body? If it's the right side of his body, then it's a left brain stroke, and his speech will almost certainly be fine. If it's a right brain stroke then that's harder for his speech, but at his age he would still have an excellent outlook for speech improvement.
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    [Deleted User][Deleted User] Posts: 453
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    I'm a medical student and quite often see people who've had strokes and it is really upsetting for everyone involved, so it's completely understandable you feel the way you do. It's a shock to have a loved one go through that at any age, but especially so young, so don't feel bad that you're finding it quite difficult to cope.

    Regarding him being frustrated when you try to help, with people following a stroke their emotions tend to be all over the place. For example I've seen people who have cried when they are actually experiencing happy feelings - following a stroke the 'wires' can temporarily get a bit crossed, so don't take the irritability too seriously.

    Maybe try and get some support from family and friends and the Stroke organisations mentioned above. Recovery from stroke can be quite a lengthy process but the majority of people do improve well, it just takes time :)
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    SmiirkySmiirky Posts: 1,940
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    Elanor wrote: »
    Edit: Also, you say his right side is damaged, do you mean right brain stroke, or right side of his body? If it's the right side of his body, then it's a left brain stroke, and his speech will almost certainly be fine. If it's a right brain stroke then that's harder for his speech, but at his age he would still have an excellent outlook for speech improvement.

    It's the right side of his body..I know it's very early days but..I'm just mentally and physically drained, i'd take all the pain away from him and give it to myself if I could. *sigh* :(
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    SmiirkySmiirky Posts: 1,940
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    mattsh wrote: »
    I'm a medical student and quite often see people who've had strokes and it is really upsetting for everyone involved, so it's completely understandable you feel the way you do. It's a shock to have a loved one go through that at any age, but especially so young, so don't feel bad that you're finding it quite difficult to cope.

    Regarding him being frustrated when you try to help, with people following a stroke their emotions tend to be all over the place. For example I've seen people who have cried when they are actually experiencing happy feelings - following a stroke the 'wires' can temporarily get a bit crossed, so don't take the irritability too seriously.

    Maybe try and get some support from family and friends and the Stroke organisations mentioned above. Recovery from stroke can be quite a lengthy process but the majority of people do improve well, it just takes time :)

    It's good to know i'm not being over emotional..I literally got home and cannot stop crying, I just yearn to be back with him, eventhough I can do nothing to help apart from hold his hand and tell him that I love him so much, you know?
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    chocoholic100chocoholic100 Posts: 6,411
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    another reassurement that people can make a good recovery from strokes, my brother had one when was young and made an excellent recovery
    give the stroke association a call, even if for a friendly chat about how you are feeling and how your partner will need you
    good luck and stay strong for you and him x
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    chocoholic100chocoholic100 Posts: 6,411
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    if you need to chat or vent there will always be someone around on here you know
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    ElanorElanor Posts: 13,326
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    I'm getting myself all muddled about which side is which - ignore my left/right things OP, I can't remember which side does what now.

    But please relax, there's nothing you can do except wait - the brain really is very good at repairing itself, but it takes time.
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    [Deleted User][Deleted User] Posts: 453
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    Smiirky wrote: »
    It's good to know i'm not being over emotional..I literally got home and cannot stop crying, I just yearn to be back with him, eventhough I can do nothing to help apart from hold his hand and tell him that I love him so much, you know?

    That's just about all you can do really at the moment - be there for him. He's getting the care he needs and will start to show signs of improvement soon. All the best.
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    SmiirkySmiirky Posts: 1,940
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    mattsh wrote: »
    That's just about all you can do really at the moment - be there for him. He's getting the care he needs and will start to show signs of improvement soon. All the best.

    Thank you, very much. It's quite strange knowing most people my age (20) will be out getting trashed on NYE, i'll be sat with Adam bringing the new year in with him. :)
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    [Deleted User][Deleted User] Posts: 2,187
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    So sorry to hear your news.

    My Dad had a stroke in his 50's, he was a walking statistic for having one, overweight, drinker, smoker etc.

    His was quite a major one, but he made a full recovery in a relatively short period of time.

    What I'm trying to say is that if someone in his position can make a full recovery, despite his age and lifestyle, then there's every reason to be optimistic in your case.

    I wish you all the best. :)
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    [Deleted User][Deleted User] Posts: 6,924
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    Hi I just wanted to say that it is early days and that Adam is in the best place. It is an awful scary thing to go through but time does heal. You need to take care of yourself too as Adam will need all your love and help when he comes home as he will do. He is a young man so there is every chance he will recover fully. Unfortunately my dad was in his 80's when he had his stroke. He gave up the will to live and we lost him a few short months later. Don't give up hope, your Adam will recover! xx
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    SmiirkySmiirky Posts: 1,940
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    avasgranny wrote: »
    Hi I just wanted to say that it is early days and that Adam is in the best place. It is an awful scary thing to go through but time does heal. You need to take care of yourself too as Adam will need all your love and help when he comes home as he will do. He is a young man so there is every chance he will recover fully. Unfortunately my dad was in his 80's when he had his stroke. He gave up the will to live and we lost him a few short months later. Don't give up hope, your Adam will recover! xx

    I'm too worried about him to care about myself :(
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    scorpio manscorpio man Posts: 4,960
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    OP, Please don't get yourself in tizzy, they can do wonderful things in getting your partner well again.

    To reassure you one of my boys had a stroke earlier this year aged 25, it affected his speech, sight and balance, he has now made near on a full recovery and back at work, just his speech is a little slurred still.
    Last week he was taken off the Warfarin medication and also given the ok to start driving again.

    Hang in there young lady, he'll be right as rain before you know it.
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    [Deleted User][Deleted User] Posts: 778
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    Its very very early days and as others have said full recovery takes quite a while. My dad (just turned 80) had one last year, and it made him slur and affected the left side (right-side brain stroke) it was quite a few months before he recovered, but then of course he is much older, and he still sometimes slurs a tiny bit if he is very tired. He can still play the piano though!! (he couldnt directly after the stroke but he persevered with it and as others here have said, the brain repairs itself very well). All is not lost my dear.
    He still sometimes gets really emotional and tearful over things that make him really happy and heightened emotions are a symptom of these kinds of strokes. Im sure right now Adam is slightly confused, devastated, and angry that this has happened to him so young, quite apart from the frustrations involved in trying to speak and do things. Dont allow his frustrations to upset you they arent aimed at you - its just part of the package. We often take things out on those we love the most after all. You WILL get through this, even though you are terrified right now. Do talk to doctors helplines or even just chat on here, it all helps because YOU also need some comfort and support right now, to help him recover. So remember HE is being cared for by the right people, its YOUR job to stay well and find out whatever you can, and support and encourage him to do things for himself (slowly - its very early days yet, that will really come later). Best wishes x
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    SmiirkySmiirky Posts: 1,940
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    Pandy65 wrote: »
    Im sure right now Adam is slightly confused, devastated, and angry that this has happened to him so young, quite apart from the frustrations involved in trying to speak and do things. Dont allow his frustrations to upset you they arent aimed at you - its just part of the package. We often take things out on those we love the most after all. You WILL get through this, even though you are terrified right now. Do talk to doctors helplines or even just chat on here, it all helps because YOU also need some comfort and support right now, to help him recover. So remember HE is being cared for by the right people, its YOUR job to stay well and find out whatever you can, and support and encourage him to do things for himself (slowly - its very early days yet, that will really come later). Best wishes x

    He has been getting really angry at me because I can't understand what he's saying, it makes me feel so crappy..But I know he's frustrated, I really do, but all I want to do is be there for him...I'm going back up there to see him at 5.30 just because I can't help being close to him when I know he needs me. :o
    I know the recovery will take time, it's just such a shame to see his amazingly charismatic character shattered just like that, you know?
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    [Deleted User][Deleted User] Posts: 778
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    try and think of it as temporarily gone on holiday rather than "gone" - its very early yet, and recovery does take time. I know in my dads case part of the frustration was in the fact that he simply couldnt make his tongue and mouth do what he wanted it to, as well as the not being understood thing. Tell him to take it really slowly, and that theres no point stressing himself out over it and reassure him he is in the best place for care and treatment and this will improve. Plus in time youll also adapt and learn to understand him better. Keep your eyes open for hand movements and eye movements gesticulating "I want my watch on" "undo my shirt Im hot" that kind of thing, people often dont realise how much body language actually goes into talking. Most of all, though, have a big fat cyber hug from us all, cos you are obviously a lovely caring woman whos prepared to go through the hard stuff face on. well done you xxxx
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    [Deleted User][Deleted User] Posts: 12,881
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    Smiirky wrote: »
    He has been getting really angry at me because I can't understand what he's saying, it makes me feel so crappy..But I know he's frustrated, I really do, but all I want to do is be there for him...I'm going back up there to see him at 5.30 just because I can't help being close to him when I know he needs me. :o
    I know the recovery will take time, it's just such a shame to see his amazingly charismatic character shattered just like that, you know?

    Take a notepad and pen in with you if he can write. That may help him communicate. His character is still there. It has just been temporarily interrupted.
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    [Deleted User][Deleted User] Posts: 13,497
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    Smiirky wrote: »
    He has been getting really angry at me because I can't understand what he's saying, it makes me feel so crappy..But I know he's frustrated, I really do, but all I want to do is be there for him...I'm going back up there to see him at 5.30 just because I can't help being close to him when I know he needs me. :o
    I know the recovery will take time, it's just such a shame to see his amazingly charismatic character shattered just like that, you know?

    He is frustrated and taking it out on you, don't take his crap! Tell him you are just as frustrated as he is, and you will both have to handle this together! Once thats off your chest, don't take it personally if he snaps. When our nanny had a stroke she came back well the first time it was the second one a few years after (that started at the back of her brain) that left her with vascular dementia. Her full time carer is her daughter and I remember one day being in the house and she put her recliner chair up and as she did so she kicked her trolley and her drink went everywhere, her daughter didn't see it happen, but as soon as she stepped into the livingroom nanny ripped into her about getting a cloth, she was quite brutal. I think when you are frustrated you take it out on those closest to you.

    Wait until all the tests have been done and you know the full facts of the situation. Then arrange for a social worker to assess his needs for when he gets home, like extra banisters on the stairs etc.

    Hope he gets well soon, and make you have someone to look after you too!
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