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Worried following scan

eluf38eluf38 Posts: 4,874
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Yesterday we went for our 20 week scan. Instead of getting to see our baby, after 40 minutes we were told there were problems getting pictures of the heart and lower limbs and the baby was the same size as it should be at 15 weeks.
Rather than being told to come back for a second scan, we've been referred to a fetal medicine specialist. We have to wait 5 days for a specialist scan and examination, possibly an amnesiosis test for chromosome disorders.
Doctors say a second, clearer scan could reveal everything to be normal. Or it could be very, very bad.
I don't know how I'm going to cope with the waiting. I'm trying not to think about what may come after. I look back at old FB posts announcing we were expecting our first baby and I'm so scared that we might not have a healthy baby, or a baby at all. I hate feeling so helpless.
I don't know what advice I'm looking for, but I can't really face telling anybody over the phone or face to face at the moment.
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    duckyluckyduckylucky Posts: 13,862
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    I just want to give some support and ask if its okay if I say a prayer to Our Lady of Fatima . Just try and stay positive until the specialist can see you and give you more info
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    eluf38eluf38 Posts: 4,874
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    duckylucky wrote: »
    I just want to give some support and ask if its okay if I say a prayer to Our Lady of Fatima . Just try and stay positive until the specialist can see you and give you more info

    Thanks. It's the staying hard that's positive, because nothing we can do can fix things. Waiting is driving me crazy.
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    duckyluckyduckylucky Posts: 13,862
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    eluf38 wrote: »
    Thanks. It's the staying hard that's positive, because nothing we can do can fix things. Waiting is driving me crazy.

    I know , waiting is never easy . Just take one day at a time , dont think ahead . Sending you good wishes and am here to listen .
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    RandomSallyRandomSally Posts: 7,072
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    I hope all goes ok. Just try and keep in mind it is possible the equipment was faulty or you may possibly just not be someone who has an average size baby.
    And as for the problems getting pictures of the baby's limbs etc my two buggers wouldn't co-operate so the scan pics look like blobs!
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    eluf38eluf38 Posts: 4,874
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    I hope all goes ok. Just try and keep in mind it is possible the equipment was faulty or you may possibly just not be someone who has an average size baby.

    I felt a little bit better when speaking to Mum about it, and she said that both me and my sister were 5lbs 12oz at birth. Nurses didn't believe she wasn't a smoker, because we were abnormally little babies - and we're not very tiny now!

    The scan notes did say it was a difficult scan in terms of visibility, but two sonographers had a look, and the fact that we've been referred to a specialist straight away rather than told to go back to our local hospital is what makes me nervous.
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    dosanjh1dosanjh1 Posts: 8,727
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    eluf38 wrote: »
    Yesterday we went for our 20 week scan. Instead of getting to see our baby, after 40 minutes we were told there were problems getting pictures of the heart and lower limbs and the baby was the same size as it should be at 15 weeks.
    Rather than being told to come back for a second scan, we've been referred to a fetal medicine specialist. We have to wait 5 days for a specialist scan and examination, possibly an amnesiosis test for chromosome disorders.
    Doctors say a second, clearer scan could reveal everything to be normal. Or it could be very, very bad.
    I don't know how I'm going to cope with the waiting. I'm trying not to think about what may come after. I look back at old FB posts announcing we were expecting our first baby and I'm so scared that we might not have a healthy baby, or a baby at all. I hate feeling so helpless.
    I don't know what advice I'm looking for, but I can't really face telling anybody over the phone or face to face at the moment.

    Good luck eluf38 hope all goes well.
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    duckyluckyduckylucky Posts: 13,862
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    Be reassured that they are being extra careful and getting a specialist involved . They are looking out for you and for your baby by making sure the right person sees the scan
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    RandomSallyRandomSally Posts: 7,072
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    It's hopefully a 'better safe than sorry' move. The NHS likes people to fit i certain guidelines for everything now and seem to find it odd the some people aren't average. Plus they have to keep the consultants busy enough to stop the money men trying to cut things. ;)
    I understand you must be really worried and of course you would be. Anyone would and a wait doesn't help. Try and keep busy so you don't allow your brain to dwell on the what ifs I guess. And you always have DS to come and vent to. :)
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    evie71evie71 Posts: 1,372
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    I'm sorry that you're having to go through this worry when it should really be such an exciting time for you. Firstly, today many pregnant women are referred to the specialist team for all sorts of reasons and most turn out to be fine. Scans are not always accurate, in-fact it could be a case of baby being in the wrong position or if you are over-weight baby will be much harder to see, Like yourself baby could just be tiny. I was told at my scan my baby had very long legs, she doesn't she's a stumpy little thing lol ! At least you are getting the best care and if there is a problem (and it's a big if) your consultant will be on top of it.
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    eluf38eluf38 Posts: 4,874
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    Thanks everyone. I am overweight, the sonographer said my bladder was obscuring the view, and the baby was curled up face down and hardly moved during the 40-minute scan, so they couldn't get him to change position, in spite of the pressure and prodding. He doesn't move much anyway - I've hardly felt anything today. Although I felt three distinct kicks last night, and pressing our hands against the skin above my groin, husband and I both felt a heartbeat last night, so we're hopeful that the heart is strong, even if he's smaller than average.
    It's torture, waiting so long because of the bank holiday. Any other time and we'd have been seen within a day or two... four more days of not knowing! It's so hard not to imagine the worst. I could cope with anything but the prospect of losing our baby.
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    shmiskshmisk Posts: 7,963
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    If it's ok with you, I will light a candle at mass tomorrow for your baby?
    I have everything crossed for you
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    [Deleted User][Deleted User] Posts: 9,328
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    Keeping everything crossed for you xx
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    puffenstuffpuffenstuff Posts: 1,069
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    duplicate post sorry
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    puffenstuffpuffenstuff Posts: 1,069
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    Stay strong and I will be praying for you. Its reassuring to know that you have been referred on for a more detailed scan by an expert as this will be much more exact.

    further tests dont always mean bad news, they are a pain in the butt but can have good outcomes despite all the dire predicitons and just to give you a huge hug during this stressful time youre going through. Its the worst part no doubt about it having to wait, but please just take deep breaths and meditate, listen to music whatever it takes try and let it all go and relax. worrying wont change a thing.
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    Frankie_LittleFrankie_Little Posts: 9,271
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    Adding my support here, Eluf. Hopefully all will be well and your son/daughter was just being a contrary little so-and-so! It's not that unusual to be referred to a specialist, and soon you'll know exactly what's going on. My thoughts are with you x
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    CroctacusCroctacus Posts: 18,296
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    Fingers crossed everything will be ok. Drs tend to err on the side of caution just to be on the safe side. My sister had something similar due to chicken pox in pregnancy. They were concerns the baby had shortened limbs as a side effect but a later scan just showed he was on the short side (as had his older sister been) and so his legs were a bit short. Fast foward 14 years and he's a strapping 14 year old.
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    frisky pythonfrisky python Posts: 9,737
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    Eluf it could be the hospital's policy that rather than just book in for another scan, anything that could indicate a potential problem is looked at by a specialist. When I was expecting my son his 20week scan they found problems with his kidneys. We had to have further scans and followups and they showed the problem had corrected itself. I do understand how worrying it all is but as yet nothing is wrong, they just couldn't get a clear enough picture to see.

    Do you have a midwife you could talk to? Particularly if you're concerned over baby's heartbeat?
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    AddisonianAddisonian Posts: 16,377
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    Keeping my fingers crossed for you eluf. Some friends of ours had a similar scare but their baby turned out to be fine.
    I know it's difficult but you just need to try and stay as positive as you can until you see the specialist. You'll need some good old distraction therapy in the coming days.
    Take care.
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    evie71evie71 Posts: 1,372
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    eluf38 wrote: »
    Thanks everyone. I am overweight, the sonographer said my bladder was obscuring the view, and the baby was curled up face down and hardly moved during the 40-minute scan, so they couldn't get him to change position, in spite of the pressure and prodding. He doesn't move much anyway - I've hardly felt anything today. Although I felt three distinct kicks last night, and pressing our hands against the skin above my groin, husband and I both felt a heartbeat last night, so we're hopeful that the heart is strong, even if he's smaller than average.
    It's torture, waiting so long because of the bank holiday. Any other time and we'd have been seen within a day or two... four more days of not knowing! It's so hard not to imagine the worst. I could cope with anything but the prospect of losing our baby.

    As this is your first pregnancy, you won't feel any movement until about twenty weeks and even then it will be little flutters at first. I know it's hard but please try not to stress. From your post nothing really stands out as terribly out of the ordinary,n ot all babies like to perform for the camera:) and at 20 weeks it's still to early to state for sure if a baby is small or not.
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    turquoiseblueturquoiseblue Posts: 2,431
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    Eluf, there's no doubt you will be in a terrible state of anxiety about this, it's perfectly understandable. Allow yourself to cry and be afraid, who wouldn't? Be kind to yourself and don't beat yourself up. The waiting is the hardest part, but you will get through it. Us humans do find the strength to cope with things. Kind regards TB
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    Rab64Rab64 Posts: 1,296
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    Being small is not always a problem. I was 4 1/2 lbs when I was born, did not require any special treatment. I am now 6' 2", and 16 stone
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    tigragirltigragirl Posts: 13,447
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    Thinking of you and hoping everything will work out just fine at your next scan. I know the wait is terrible ( I have been there myself with one of my pregnancies) , time drags and every possible thought goes through your mind.
    We will all be thinking of you and have everything crossed for you.
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    Frankie_LittleFrankie_Little Posts: 9,271
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    tigragirl wrote: »
    Thinking of you and hoping everything will work out just fine at your next scan. I know the wait is terrible ( I have been there myself with one of my pregnancies) , time drags and every possible thought goes through your mind.
    We will all be thinking of you and have everything crossed for you.
    Seconded.
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    TagletTaglet Posts: 20,286
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    Try not to worry OP...wanting extra tests doesnt mean that something is definitely wrong and even if there are problems it doesnt mean that they cannot be overcome. My niece had a similar experience at her 20 week scan, although they found tetrology of fallot (four heart defects) so the baby will need heart surgery in the first year of life. She was also tested for four chromosomal abnormalities because they are associated with the heart defect and her baby had none of them but she had an agonising wait.

    All you can do is take each day at a time and lean on very heavily in your support networks. Best wishes with the next stage :)
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    jackoljackol Posts: 7,887
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    Try and keep positive x x x
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