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Why donate to cancer research?

[Deleted User][Deleted User] Posts: 7,481
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In the news today there was an item about NICE (National Institute for Clinical Excellence) recommending that a particular cancer drug should be denied cancer sufferers because of cost.

It seems an odd situation that Joe Public - who donates millions of pounds each year to cancer research - is denied drugs if he finds himself stricken by cancer, because the companies hold the NHS to ransom.

Should the public go on donating?

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    [Deleted User][Deleted User] Posts: 6,709
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    There are over 200 types of cancer.
    Is it fair to stop donating to research because of ONE treatment being deemed too expensive?
    If not for cancer research, so many cancers would still be massive killers - like Breast cancer, Testicular cancer etc. etc.

    Personally I would say do not only contribute to Cancer Research UK - as they do not fund research outside the UK and it is just as likely breakthroughs are going to be made elsewhere in the world - but they will benefit the whole world including Britain.

    Look for a charity called Association for International Cancer Research - they 'pool' donations and distribute it to research happening all over the world.

    Just because you may be angry that a treatment or drug has been rejected by the NHS due to cost, don't let the fight against all cancer suffer as a result.
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    A321A321 Posts: 6,363
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    Could be the other way round. The NHS doesn't want to stump up the cash and is 'advising' NICE.
    They say they're independent but...

    NICE guidance is developed by a number of independent advisory groups made up of health professionals, those working in the NHS, patients, their carers and the public.
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    [Deleted User][Deleted User] Posts: 36,388
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    Wasn't Herceptin only fast tracked for funding following successful campaigning by breast cancer sufferers?

    I think its selfish to think that people should stop donating because of this decision over one drug. As BigBHM has said, without regular donations to this charity many of the cancer survivors wouldn't be with us today.

    I'll be continuing to donate so that new treatments can be found, and so that more people will survive.
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    KJ44KJ44 Posts: 38,093
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    Thanks to everyone who donated. 21 years after and counting. :) :cool:
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    [Deleted User][Deleted User] Posts: 22,736
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    I hold an event every year with funds donated to CRUK. I will carry on doing so 1 in 3 of us will be diagnosed with cancer and the more research, the more chance we have!
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    HypnodiscHypnodisc Posts: 22,728
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    Some of Cancer Research UK's work, from Wikipedia:

    http://en.wikipedia.org/wiki/Cancer_Research_UK
    Research

    In the financial year 2008/09, the Charity spent £303 million on cancer research, funding the work of over 4,500 researchers, doctors and nurses throughout the UK. It supports over 100 clinical trials and studies cancer and cancer risk in over a million people in the UK. Around 40% of the overall research expenditure goes on basic laboratory research, which is relevant to all types of cancer. This research into the molecular basis of cancer improves understanding of how cancer develops and spreads and thus provides a foundation for other research. The rest of its funding is used to support research into over 100 specific cancer types, focusing on key areas such as drug discovery and development; prevention, early detection and imaging; surgery and radiotherapy; and cancers where survival is still low, such as oesophageal, lung and pancreatic cancers. This vital work will help ensure that millions more people will survive cancer.

    Information services

    The Charity provides information to the general public, the scientific community and healthcare professionals. Its website http://www.cancerresearchuk.org is the number one cancer information website in the UK. CancerHelp UK [1] is its award-winning website for anyone affected by cancer, offering information on cancer and cancer care, and a unique clinical trials database. A specialist team of cancer information nurses provides a confidential telephone service, and mobile cancer awareness units deliver health information to locations where cancer incidence and mortality are higher than average.

    Cancer Research UK also publishes a twice-monthly professional medical journal, the British Journal of Cancer.

    Influencing public policy

    The Charity works with the UK governments to inform and improve cancer services. It was instrumental in bringing about the smokefree workplaces legislation and continues to campaign for further action on smoking. The charity lobbies for better screening programmes and advises on access to new cancer medicines, amongst other issues.
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    HotgossipHotgossip Posts: 22,385
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    There is a lot of cancer in my family and I have lost several close family to it. From the time the first family member was diagnosed I have raised money for cancer charities.

    I have not sent Xmas cards for the past 5 years but have sent a donation in lieu of them plus postage to charity. I have also done the Race for Life a couple of times and have done sponsored bike rides.

    I am very puzzled today after hearing this on the news and may need to re-think.

    It seems crazy to me that these drugs will not be available for bowel cancer sufferers yet they are proven. However they will willingly pay out millions for obese people to have weight loss surgery. :rolleyes: I've said it on here before but I know a woman who has had a gastric bypass op and further surgery to remove all her excess skin and she proudly says that if she'd had to pay it would be in the region of £24,000. I see that as totally unnecessary expenditure.
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    [Deleted User][Deleted User] Posts: 36,388
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    KJ44 wrote: »
    Thanks to everyone who donated. 21 years after and counting. :) :cool:


    I'm not sure that congratulations is the right word here KJ, but you know what I mean...
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    [Deleted User][Deleted User] Posts: 1,036
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    Cancer research gets way too much money IMHO. There are other diseases out there which are nowhere near as well funded and the charities get an absolute pittance. Unfortuantely nowadays "charity" is big busine$$. Its a "winner takes all" situation (and I'm not talking Jimmy Tarbuck). The big fat cat charities get bigger and bigger feasting on the vein of publicity, all the while the smaller charities sink further and further into oblivion.

    The situation is most unfair.
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    [Deleted User][Deleted User] Posts: 7,481
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    Hotgossip wrote: »
    There is a lot of cancer in my family and I have lost several close family to it. From the time the first family member was diagnosed I have raised money for cancer charities.

    I have not sent Xmas cards for the past 5 years but have sent a donation in lieu of them plus postage to charity. I have also done the Race for Life a couple of times and have done sponsored bike rides.

    I am very puzzled today after hearing this on the news and may need to re-think.

    It seems crazy to me that these drugs will not be available for bowel cancer sufferers yet they are proven. However they will willingly pay out millions for obese people to have weight loss surgery. :rolleyes: I've said it on here before but I know a woman who has had a gastric bypass op and further surgery to remove all her excess skin and she proudly says that if she'd had to pay it would be in the region of £24,000. I see that as totally unnecessary expenditure.

    Don't forget you can also get your vaginal labia tidied up on the NHS.
    Priorities, huh?
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    [Deleted User][Deleted User] Posts: 7,481
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    garcia wrote: »
    Cancer research gets way too much money IMHO. There are other diseases out there which are nowhere near as well funded and the charities get an absolute pittance. Unfortuantely nowadays "charity" is big busine$$. Its a "winner takes all" situation (and I'm not talking Jimmy Tarbuck). The big fat cat charities get bigger and bigger feasting on the vein of publicity, all the while the smaller charities sink further and further into oblivion.

    The situation is most unfair.

    That's true.
    I've also never understood why there's so much emphasis on certain forms of cancer - breast cancer especially gets all the publicity.
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    HotgossipHotgossip Posts: 22,385
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    Don't forget you can also get your vaginal labia tidied up on the NHS.
    Priorities, huh?

    You kidding me:confused:
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    SULLASULLA Posts: 149,789
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    If a cancer drug is so expensive that nobody is buying it, they will have to lower the price:)
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    [Deleted User][Deleted User] Posts: 22,736
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    Don't forget you can also get your vaginal labia tidied up on the NHS.
    Priorities, huh?

    Nothing suprises me, you can have breast enhancements if you are a good enough actress to prove it is causing you psychological distress:rolleyes:
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    anon-y-mouseanon-y-mouse Posts: 2,385
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    I have worked with research scientists and know from first hand that as soon as a grant from, for instance the MRC is approved, those same scientists refurbish their offices first and foremost. Now I;m not saying that all scientists are the same, but I have worked with many scientists over the years and the same thing always happens.
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    [Deleted User][Deleted User] Posts: 2,286
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    KJ44 wrote: »
    Thanks to everyone who donated. 21 years after and counting. :) :cool:


    KJ44...your post gives me, & possibly many others reading the thread, realisation that there are happy survivors:)

    My thanks to everyone continuing to support the Cancer Charities. Nearly 3 years and counting. :D
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    [Deleted User][Deleted User] Posts: 36,388
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    That's true.
    I've also never understood why there's so much emphasis on certain forms of cancer - breast cancer especially gets all the publicity.


    Without that publicity my sister wouldn't be receiving the treatment she is having today.

    Keep up the good work I say. :cool:
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    zx50zx50 Posts: 91,272
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    I do think it's disgraceful that people who've donated to cancer are being refused the drug when they've been afflicted with the disease. It's like we can give, but when our time comes to be given the drugs, we'll get refused.
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    [Deleted User][Deleted User] Posts: 7,481
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    Without that publicity my sister wouldn't be receiving the treatment she is having today.

    Keep up the good work I say. :cool:

    I truly hope your sister makes a good recovery, and I'm also glad that men are being urged to seek help for possible prostate cancer - but what about other forms as well, like gut cancer?
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    [Deleted User][Deleted User] Posts: 36,388
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    I truly hope your sister makes a good recovery, and I'm also glad that men are being urged to seek help for possible prostate cancer - but what about other forms as well, like gut cancer?

    I agree that awareness has to be raised for all types of cancer Mrs F. But unfortunately this can only happen with funding & relentless campaigning - hence the need for the continued donations to *all* cancer charities, not just cancer research.
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    RetrospectiveRetrospective Posts: 3,133
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    Why not donate to cancer research? And donate to any research that is fighting for cures to life threatening illnesses.
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    [Deleted User][Deleted User] Posts: 7,481
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    I agree that awareness has to be raised for all types of cancer Mrs F. But unfortunately this can only happen with funding & relentless campaigning - hence the need for the continued donations to *all* cancer charities, not just cancer research.

    I'll happily give to McMillan Nurses and Marie Curie - but they're giving support to sufferers. Isn't there only one Cancer Research charity??
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    [Deleted User][Deleted User] Posts: 36,388
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    I'll happily give to McMillan Nurses and Marie Curie - but they're giving support to sufferers. Isn't there only one Cancer Research charity??

    Locally we donate to Action Cancer, and to the Ulster Cancer Foundation. I'm sure there are many charities local to you that are involved in raising awareness as well as fund raising & offering support to sufferers.
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    [Deleted User][Deleted User] Posts: 6,709
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    I'll happily give to McMillan Nurses and Marie Curie - but they're giving support to sufferers. Isn't there only one Cancer Research charity??

    Clearly you did not read my post. The 2nd post in the thread.
    While I did not say 'do not' donate to CRUK, I did mention the AICR who spread their funds to research being done internationally as a cure or treatment can be found anywhere in the world.

    Besides it has to be said that treatments and drugs are not the ONLY parts of cancer research.
    They are looking at cancer at a genetic level, and making huge discoveries - like finding the gene that allows cancerrs to spread. More research needs to be done in the genetic area of fighting cancer because if they can isolate those genes then there is every chance that EVERY form of cancer can be treated the same way without the need for expensive drugs etc.
    They are still at least a decade away from completing this research and will be even more so if people take the ridiculous decision to stop donating to cancer research on the basis that ONE drug is deemed to expensive to use on the NHS.
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    lea_uklea_uk Posts: 9,648
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    Of course all illnesses need money for research and not just cancer but that doesn't mean cancer research charities get too much money.
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